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Introduction: The identification of central poststroke pain (CPSP) can be facilitated by the provision of diagnostic tools. This study aimed to develop a diagnostic scoring system for CPSP in hospital settings and to analyze the accuracy and reliability of its use in Puskesmas. Method: This cross-sectional diagnostic study was conducted on 166 hospital and 303 stroke survivors from Puskesmas in Manado City and its outskirts area. Result: Based on cox regression, three key variables were identified as dominant determinants of CPSP: stroke severity, pin-prick deficit, and light-touch deficit. The prevalence of CPSP in hospitals, determined using the gold standard, was 30.1%. With a cut-off score of ≥2, the sensitivity and specificity were 82.0% and 78.45%, respectively. Using Bayes' theorem, the probability of CPSP in hospitals with a score ≥2 was 62.12%, and <2 was 8.98%. At the primary health centers, neurological specialist examinations revealed a CPSP prevalence of 40.9% based on the Sasmita scoring system. The accuracy test showed that the sensitivity of the Sasmita score assessed by neurologists and general practitioners was 71.61% and 76.35%, respectively. Bayes' theorem calculations indicated a CPSP probability at the Puskesmas of 67.69% with a score ≥2 and 20.42% with a score <2. Inter-rater reliability testing among general practitioners yielded a value of 0.576. Descriptively, stroke patients with CPSP had lower quality of life compared to those without CPSP, with the most commonly affected domain being energy. Conclusion: Three key variables were identified as dominant determinants of CPSP: stroke severity, pin-prick deficit, and light-touch deficit. The prevalence of CPSP in this study is relatively high both at hospital and Puskesmas settting. Sasmita score has good accuracy and moderately reliable in detecting CPSP at primary and tertiary care level. Suggestion: The Sasmita scoring system can be utilized in future studies related to the clinical epidemiology of poststroke pain. Serial assessment is encouraged to be conducted for high risk poststroke patients.
Tesis ini mengeksplorasi tentang pemberian dukungan sosial kepada pasien Tuberkulosis Resistan Obat (TBC RO) oleh penyintas di Rumah Sakit Paru Dr. M. Goenawan Partowidigdo (RSPG), salah satu pusat rujukan pelayanan TBC RO. Penelitian ini mengkaji program dukungan pasien yang diinisiasi oleh kelompok penyintas TB Terjang sejak 2019. Menggunakan pendekatan studi kasus kualitatif, data dikumpulkan pada Mei 2023 melalui wawancara mendalam, observasi, dan telaah dokumen. Penelitian ini melibatkan 14 (empat belas) informan, meliputi Patient Supporter (PS), Manajer Kasus (MK), Perawat, dan pasien TB Resistan Obat. Temuan penelitian mengungkapkan bahwa mekanisme dukungan sosial yang diberikan PS sebagai penyintas kepada pasien TBC RO di RSPG sudah berjalan, dirasakan manfaatnya baik bagi pasien maupun penyedia layanan kesehatan. Namun, penguatan dalam koordinasi dan forum evaluasi formal diperlukan untuk implementasi yang optimal. Anggaran kegiatan pendampingan bergantung sepenuhnya pada dukungan donor. Peran PS dalam pendampingan pasien berfokus pada pemberian dukungan sosial kepada pasien dan keluarganya. Berbagai bentuk dukungan sosial diidentifikasi, termasuk dukungan emosional, instrumental, informasi, penilaian (appraisal), penghargaan, jaringan, tenaga kerja dan waktu, pengurangan stigma dan diskriminasi, pemantauan pengobatan, bantuan paralegal, dan dukungan kesehatan mental. Penelitian ini menyoroti pentingnya dukungan sosial yang digerakkan oleh penyintas TBC RO untuk meningkatkan kesejahteraan dan pengalaman baik bagi pasien. Peningkatan mekanisme koordinasi dan evaluasi akan semakin meningkatkan efektivitas program. Dengan mengenali peran para penyintas dan menangani kebutuhan dukungan mereka, fasilitas layanan kesehatan dapat mengembangkan pendekatan komprehensif untuk perawatan dan pengelolaan TBC RO.
This thesis, review the provision of social support to drug-resistant tuberculosis (DRTB) patients by survivors at Dr. M. Goenawan Partowidigdo Lung Hospital (RSPG), a referral center for DRTB service. The study examines patient support programs initiated by a TB survivors’ group Terjang since 2019. Employing a qualitative case study approach, data was collected in May 2023 through in-depth interviews, observations, and document reviews. The research involved 14 informants, including Patient Supporters (PS), Case Managers (MK), Nurses, and Drug Resistant TB patients. The study findings reveal that the mechanism of social support provided by PS as survivor to TB patients at RSPG has been implemented, benefiting both patients and healthcare providers. However, improvements in coordination and formal evaluation forums are necessary for optimal implementation. The program's budget relies entirely on donor support. PS's role in patient accompaniment focuses on providing social support to patients and their families. Various forms of social support were identified, including emotional, instrumental, informational, appraisal, appreciation, network, labor and time support, stigma and discrimination reduction, treatment monitoring, paralegal assistance, and mental health support. This research highlights the importance of survivor-driven social support in improving the well-being and experiences of drug-resistant TB patients. Enhancing coordination and evaluation mechanisms will further enhance the program's effectiveness. By recognizing the role of survivors and addressing their support needs, healthcare institutions can develop comprehensive approaches to TB care and management. .
